About

The description in italics below is what I wrote almost exactly two years ago, shortly after we found out that AJ had leukaemia. It got worse before it got better. She did recover from the leukaemia but in the process got brain damage from the chemotherapy. It is all in this blog if anyone wants the gruesome details.
She did get better in many ways but has been left withproblems. We are off on a Baxter Family road trip to Budapest to take AJ to The Peto Institute.
The blog has very much been on hold as AJ has improved and there has been less to tell. But I think there might some fun tales to tell as we make our way through Europe. We plan to drive through as many countries as possible both there and on the way back, so chances are we will be up to some nonsense.
Some of the older readers might remember National Lampoon’s European Vacation and I can imagine us getting into scrapes much like the Griswold Family.
So we are off next Friday 12th July and I hope to be updating when possible.

Picture2

This is a blog about my family and particularly about our daughter/sister, Ava-Jane. She is going through a hard time at the moment.

I hope the blog will be funny, truthful and informative.

I have called it Mis Literature as there does seem to be a tendency for people to record the misery in their lives so I thought I would jump on the bandwagon. I do not think out lives are in the least miserable, in fact I think we are incredibly lucky and have an amazing and cheerful life. But when put down in black and white it does sometimes amaze me some of the crap we have been through and are going through. Ava-Jane getting leukaemia really does feel like a step too far.

She has just turned two, has Down’s Syndrome and had open-heart surgery at four-months old. Chemotherapy on top of all that seems a bit harsh. She is truly a ray of sunshine. She brings a smile to everyone’s face. Does she really deserve this?

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11 thoughts on “About

  1. My thoughts are with you all so much and she WILL get better.
    You have written this brilliantly and I hope that it may help you a bit to get it down on whatever this is,not paper! Its utterly moving and my fingers and toes are crossed. xx

  2. your whole family is a ray of sunshine Luke and have taken on all these challenges so incredibly bravely, our love and best wishes to Ava-Jane for her treatment

  3. Luke, my friend… I am in shock… I wish you the best. You are a wonderful person and I believe that you have a wonderful family. I am sure that everything wil be fine. Un besazo!!

  4. Luke and Fo – our thoughts are with you.
    and as much as your good vibes at the dark times in our recent past have helped us, we shall try to transmit tons of good vibes for Ava-Jane, you two and your mum
    Huggs from Gey and Immo

  5. A budding author indeed…amazing to see what qualities get the chance to come to the surface in difficult times. You all are in my thoughts so much.

  6. An amazing Blog, I will follow until the day Ava Jane is back in my class smiling, clapping and putting me to shame with her signing. I send love to you all. Karen (Sing & Sign)xx

  7. What an inspiration she is and the twiglet thing is too hilarious! I know what she means though, bit addictive those twiglets. Ethan has the same thing about ready salted crisps – he could eat them till he looked like one. Sending all of you love, strength and twiglets. Ava Jane has been through so much already in her short life that she is obviously a fighter. She couldn’t have a better dad to help her through it. xx

  8. You are all quite amazing. Brave adventurers, have a wonderful and
    happy time. We shall all be dying to hear extraordinary stories laced with
    your lovely sense of humour.

    All best , Pat S
    ( I came to visit you once with Lucy Cassels)

  9. All power to you and the family Luke. You are indeed a great Dad. I see it every time I see you. But it extends to friends too. I’ll never forget your trip up to Derbyshire to sort me out. Three years down the line my life is very different to then, and that is massively down to your kindness and basically you just being you. Have a great trip. Love to all.

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