The description in italics below is what I wrote almost exactly two years ago, shortly after we found out that AJ had leukaemia. It got worse before it got better. She did recover from the leukaemia but in the process got brain damage from the chemotherapy. It is all in this blog if anyone wants the gruesome details.
She did get better in many ways but has been left withproblems. We are off on a Baxter Family road trip to Budapest to take AJ to The Peto Institute.
The blog has very much been on hold as AJ has improved and there has been less to tell. But I think there might some fun tales to tell as we make our way through Europe. We plan to drive through as many countries as possible both there and on the way back, so chances are we will be up to some nonsense.
Some of the older readers might remember National Lampoon’s European Vacation and I can imagine us getting into scrapes much like the Griswold Family.
So we are off next Friday 12th July and I hope to be updating when possible.
This is a blog about my family and particularly about our daughter/sister, Ava-Jane. She is going through a hard time at the moment.
I hope the blog will be funny, truthful and informative.
I have called it Mis Literature as there does seem to be a tendency for people to record the misery in their lives so I thought I would jump on the bandwagon. I do not think out lives are in the least miserable, in fact I think we are incredibly lucky and have an amazing and cheerful life. But when put down in black and white it does sometimes amaze me some of the crap we have been through and are going through. Ava-Jane getting leukaemia really does feel like a step too far.
She has just turned two, has Down’s Syndrome and had open-heart surgery at four-months old. Chemotherapy on top of all that seems a bit harsh. She is truly a ray of sunshine. She brings a smile to everyone’s face. Does she really deserve this?